Ko Tun Tun Htet’s journey is a testament to the resilience of the human spirit in the face of immense adversity. At 46 years old, he is a volunteer from Need Peer Community Representative, based in Yangon. His story begins with limited knowledge about HIV, a virus that would ultimately become a defining element of his life.
In his early years, Ko Tun Tun Htet faced academic setbacks, but continued his pursuit of education while working at the Ministry of Livestock and Aquaculture. His determination eventually paid off as he passed the exam to join the Distance Education Program at East Yangon University.
Tragedy struck when his wife was diagnosed with HIV. The burden of guilt and stigma came crashing down when a nurse insensitively accused him of infidelity. The weight of this revelation led him to contemplate suicide, but the love and responsibility he felt toward his family kept him grounded.
His wife tragically passed. Despite doctors advising him to get tested for HIV, he neglected his own health due to depression and denial. However, his own body began to display alarming symptoms eventually. Nights were plagued by chills and sweats, and his days were spent battling weakness and confusion.
A trip to Thazin Clinic in Mu Se exposed the harsh reality: he had HIV and malaria. Unfortunately, Anti-Retroviral Therapy (ART) was not available, leaving him to endure the brutal side effects of treatment. It was a lonely battle, with no family to lean on. Eventually, he was diagnosed with TB Meningitis, a diagnosis that further complicated his health journey.
The turning point in his story came when he was referred to Lashio Integrated HIV Care (IHC) Programme. His initial CD4 cell count was alarmingly low, but he embarked on the path of treatment and recovery, braving side effects and setbacks. With incredible determination, he persevered and began his ART regimen, taking his medications religiously.
Despite the hardships and the burden of being jobless due to treatment commitments, he persisted. He finally returned to his family, where new challenges awaited him. He faced societal stigma and the difficulty of securing employment due to his HIV status. It was during this period that Ma Htay, an IHC volunteer, offered him the chance to join the volunteer network.
As a volunteer, Ko Tun Tun Htet found renewed purpose. He not only gained knowledge about HIV and medications, but also met the woman he would later marry, strengthening his belief that life can be rebuilt even after the darkest of times.
Reflecting on his journey, he acknowledges the progress made in HIV care and treatment. Effective drugs and preventive measures have saved countless lives, and The Union plays a pivotal role in providing care and medication. Ko Tun Tun Htet remains hopeful for a cure, but he also understands the importance of spreading knowledge about HIV, fighting stigma and ensuring people have access to life-saving treatments.
The Union’s HIV programme shines a beacon of hope, as acknowledged by many supported by it, much like the way it ignited the spark in Ko Tun Tun Htet’s life.
Ranging from vital clinical consultations to meticulous laboratory testing, tracking those who falter and an exceptional collaborative effort in tackling TB-HIV co-infections, this programme extends a hand of support to all in need. At its core, the programme derives its strength from its people.
The volunteer network, a rich tapestry woven from individuals who have grappled with the trials of HIV/AIDS, exemplifies the resilience of the human spirit. These very volunteers, exemplified by Ko Tun Tun Htet’s journey, act as guiding lights and unwavering companions for those just embarking on the challenging path to recovery.
Ko Tun Tun Htet’s story is one of resilience, hope, and the power of compassion. He transformed personal tragedy into a commitment to improving the lives of others affected by HIV, showing that even in the face of adversity, one can rise above it with determination and the support of a caring community.
“Life dealt me a heavy blow, yet I chose to fight, not just for myself, but for all those facing this battle. We must spread knowledge, fight stigma, and ensure that everyone has access to the hope that ultimately saved my life.”